Date:Sunday May 4 2008
Vital Manchester City received the following email from Carl Tilson, grandson of 1930's City star Fred Tilson.
Fred Tilson - courtesy of Wikipedia
My name is Carl Tilson, I'm 21 years old and I have a terminal muscle wasting illness called Duchenne Muscular Dystrophy - I would like to mention I'm the grandson of Fred Tilson who played for Manchester City in the 1930's and for England!
Please could you help me!
I have created an online petition to the British Government to fund Duchenne Muscular Dystrophy because they are not funding us nearly enough, I work with a Charity called Action Duchenne formerly called Parent Project UK.
The government gave two million pounds towards a treatment called Exon Skipping, which is currently in clinical human trials - if successful, will improve the quality of life and prolong the lives for Duchenne sufferers! However, funding runs out this year, meaning trials will come to a halt! But to save our lives we need your support!
Please sign my petition on the website below.
Please show your support! We do appreciate it!
Please pass the petition to your friends & family, also ask your friends to tell their friends. You just need an email address to confirm your signature. By signing your name, you're helping to demand the government to fund Duchenne Muscular Dystrophy.
The petition reads:
We the undersigned petition the Prime Minister to Fund Duchenne Muscular Dystrophy if human MDEX Exon Skipping trial works, from the lab to the Clinic! And help get a treatment for us!
Duchenne Muscular Dystrophy (DMD) is a severe muscle wasting disease which leads to paralysis and limited life expectancy. Nearly all of those affected are boys, who are likely to be using wheelchairs by the age of ten through progressive loss of muscle function, and needing full time care by their late teens. Survival beyond teenage years is rare.
Cause of this condition is due to a protein not being produced by the body called Dystrophin, which is responsible to protect and repair muscle - making muscle function properly!
"I realise that at the age I am now, that I've not necessarily got much time left so I would rather take the chance and try a treatment now."
"What I really miss is being able to eat food; food is one of life's biggest pleasures."
"I'd rather die trying, than die without trying!"
To sign petition all you do is put your name, email address and details - it's only to prove you're a British citizen no one sees your details only your name, then you'll get an email and you have to confirm it by clicking the link in your email!
North West Campaigner/Living with DMD
Please visit www.actionduchenne.org to help our Charity!
Action is what we do... Duchenne is what it is!!!
Charity No: 1101971
Carl's Justgiving page!
Thank you for your support!
Action Duchenne - Making Muscle Wasting History!
Date:Sunday May 4 2008
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